I think you have been misinformed, and I would like to show you what really happens to parents of disabled children, and not what you have seen should happen.
As you will know getting a diagnosis for your child is like being hit by a train, you will have already had appointments on top of appointments, and then wham you get the, I/ we believe you child has……….., most of the rest is normally a blur and for the next few days you often don’t know what to do or who to turn to, some parents are lucky and will get a social worker from the child disabilities team, who will either guide them or will be as much use as a chocolate teapot, others will be left for weeks on end searching for their own answers, often not knowing where to search or who to ask.
Then there are the parents who will be hit by every brick wall they can find and are passed from pillar to post at all times, they are crying out for help that never comes, so they just muddle through as best they can. I can tell you I have never found a disabled parent who is lazy, and yes there are probably some out there that are, I am not naive I know they exist too.
Please Katie do not judge us all like that help us get the changes that need to be in place, here is what I think should happen.
A named social worker who will help us get everything our children need,
Support from day one, for the whole family,
Someone who will listen to our concerns and help when we need it,
Information networks for parents regardless of the child’s disability
Lets work together Katie we could all make change happen here and maybe you would be heard better than some of us